Welcome to the Muscular Dystrophy
Home Page
This page provides a wealth of information and videos on topics related to Muscular Dystrophy.
Rena's information regarding Muscular Dystrophy. The following website MDA: Helping Jerry's Kids, is a complete website of useful information. It provides useful information, current research, a chat section, support groups, and a donation center to help Jerry's Kids. http://www.mda.org/
http://www.ninds.nih.gov/disorders National Institute of Neurological Disorders and Strokes
this website is a wonderful resource packed full of current research and links to even more resources. It is a very broad website that would answer almost any question you may have about Muscular Dystrophy. Submitted by Laura Harris Preparing the School for Your Child with Muscular Dystrophyspecialchildren.about.com/od/musculardystrophy/a/MDschool.htm
School can be a difficult place for children with musculardystrophy -- academically, physically and socially. This website offers information about living with special needs. This article offers information for teachers and how to keep the child safe and successful in school. It tells teachers five things they need to know in order to ensure succeess for the child. There are also several other articles for teachers on this site. Submitted by Anita Robinson http://www.ninds.nih.gov/disorders/md/md.htm
The muscular dystrophies (MD) are a group of more than 30 genetic diseases characterized by progressive weakness and degeneration of the skeletal muscles that control movement. Some forms of MD are seen in infancy or childhood, while others may not appear until middle age or later. The disorders differ in terms of the distribution and extent of muscle weakness (some forms of MD also affect cardiac muscle), age of onset, rate of progression, and pattern of inheritance. Visit this site to view all the information on muscular dystrophy.
Submitted By Kristy Harbison
http://kidshealth.org/kid/health_problems/bone/muscular_dystrophy.html
This site addresses multiple health topics for children and teens. It gives answers to questions that kids and teens may have that are not addressed on sites geared toward adults, but also has pages for parents on the same topics. There are games and activities, recipes for kids, and a kid's medical dictionary. I would highly reccomend this site!
Submitted by Tammy Guthery
This site contains good information and contacts for families with a child who has muscular dystrophy. There are links to other web sites, a place to chat with other families going through the same issues as you are going through, information on research, and a booklet for siblings, "Hey, I'm Here Too!" This is a comprehensive site with useful and helpful information for families.
This site list nine different types of dystrophies which include: Duchenne Muscular Dystrophy, Becker's Muscular Dystrophy, Limb Girdle Muscular Dystrophy, Congenital Muscular Dystrophy, Fascioscapulohumeral Muscular Dustrophy, Myotonic MD, Oculopharayngeal MD, Distal MD, and Emery-Dreifuss MD. Article links with specific information on treatments, diagnosis, causes, symptoms, and organizations are available at this site.
Submitted by Ruby Reasonover Thyis link presents Dr. Maurice Swanson as he talks and explains what muscular dystrophy is and how it affects the body. http://www.youtube.com/watch?v=IGx12Wm_IEs
Submitted by Brianna Cantrell
http://www.teachmorelovemore.org/SpecialNeedsDetails.asp?id=8#119 Muscular Dystrophy (MD) is a degenerative disease in which the muscles of the body get weaker and weaker and slowly stop working.
This website offers information about MD, as well as suggestions for parents. It also offers links to over ten websites for additional information.
Submitted by Lisa Kennamer
http://www.mdff.org/
This website is a nonprofit organization which provdies information as well as services for those with Muscular Dystrophy.
Submitted by Karen Gallian http://www.wrongdiagnosis.com/m/musdys/symptoms.htm
This is a very in-depth site on Muscular Dystrophy.This site provides information on the symptoms, diagnoses, misdiagnoses, treatments, prevalence and incidence of Muscular Dystrophy.Statistical information and videos are also included in this site. Submitted by Cathy Brown
http://www.healthscout.com/ency/68/451/main.html
An in-depth description of muscular dystrophy is given on this site along with suggestions on how to talk with doctors to better understand the many disorders associated with muscular dystrophy. Submitted by Deb Talley.
Welcome to the Muscular Dystrophy
Home Page
This page provides a wealth of information and videos on topics related to Muscular Dystrophy.
Rena's information regarding Muscular Dystrophy. The following website MDA: Helping Jerry's Kids, is a complete website of useful information. It provides useful information, current research, a chat section, support groups, and a donation center to help Jerry's Kids. http://www.mda.org/
http://www.ninds.nih.gov/disorders National Institute of Neurological Disorders and Strokes
this website is a wonderful resource packed full of current research and links to even more resources. It is a very broad website that would answer almost any question you may have about Muscular Dystrophy. Submitted by Laura Harris
Preparing the School for Your Child with Muscular Dystrophy
School can be a difficult place for children with muscular dystrophy -- academically, physically and socially. This website offers information about living with special needs. This article offers information for teachers and how to keep the child safe and successful in school. It tells teachers five things they need to know in order to ensure succeess for the child. There are also several other articles for teachers on this site. Submitted by Anita Robinson
http://www.ninds.nih.gov/disorders/md/md.htm
The muscular dystrophies (MD) are a group of more than 30 genetic diseases characterized by progressive weakness and degeneration of the skeletal muscles that control movement. Some forms of MD are seen in infancy or childhood, while others may not appear until middle age or later. The disorders differ in terms of the distribution and extent of muscle weakness (some forms of MD also affect cardiac muscle), age of onset, rate of progression, and pattern of inheritance. Visit this site to view all the information on muscular dystrophy.
Submitted By Kristy Harbison
http://kidshealth.org/kid/health_problems/bone/muscular_dystrophy.html
This site addresses multiple health topics for children and teens. It gives answers to questions that kids and teens may have that are not addressed on sites geared toward adults, but also has pages for parents on the same topics. There are games and activities, recipes for kids, and a kid's medical dictionary. I would highly reccomend this site!
Submitted by Tammy Guthery
http://www.familyvillage.wisc.edu/lib_md.htm
This site contains good information and contacts for families with a child who has muscular dystrophy. There are links to other web sites, a place to chat with other families going through the same issues as you are going through, information on research, and a booklet for siblings, "Hey, I'm Here Too!" This is a comprehensive site with useful and helpful information for families.
Submitted by: Susan Riggs
http://www.dystrophy.com
This site list nine different types of dystrophies which include: Duchenne Muscular Dystrophy, Becker's Muscular Dystrophy, Limb Girdle Muscular Dystrophy, Congenital Muscular Dystrophy, Fascioscapulohumeral Muscular Dustrophy, Myotonic MD, Oculopharayngeal MD, Distal MD, and Emery-Dreifuss MD. Article links with specific information on treatments, diagnosis, causes, symptoms, and organizations are available at this site.
Submitted by Ruby Reasonover
Thyis link presents Dr. Maurice Swanson as he talks and explains what muscular dystrophy is and how it affects the body.
http://www.youtube.com/watch?v=IGx12Wm_IEs
Submitted by Brianna Cantrell
http://www.teachmorelovemore.org/SpecialNeedsDetails.asp?id=8#119
Muscular Dystrophy (MD) is a degenerative disease in which the muscles of the body get weaker and weaker and slowly stop working.
This website offers information about MD, as well as suggestions for parents. It also offers links to over ten websites for additional information.
Submitted by Lisa Kennamer
http://kidshealth.org/teen/diseases_conditions/bones/muscular_dystrophy.html
This is a great site for teens suffering with Muscular Dystrophy. It gives a lot of helpful information and discusses what life is like for teens with Muscular Dystrophy.
Submitted By: Anna McSwain
http://www.mdff.org/
This website is a nonprofit organization which provdies information as well as services for those with Muscular Dystrophy.
Submitted by Karen Gallian
http://www.wrongdiagnosis.com/m/musdys/symptoms.htm
This is a very in-depth site on Muscular Dystrophy. This site provides information on the symptoms, diagnoses, misdiagnoses, treatments, prevalence and incidence of Muscular Dystrophy. Statistical information and videos are also included in this site.
Submitted by Cathy Brown
http://www.healthscout.com/ency/68/451/main.html
An in-depth description of muscular dystrophy is given on this site along with suggestions on how to talk with doctors to better understand the many disorders associated with muscular dystrophy. Submitted by Deb Talley.